A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France.
Journal of Market Access & Health Policy. 2021-01-01; 9(1):
DOI: 10.1080/20016689.2021.1885789
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1. J Mark Access Health Policy. 2021 Feb 23;9(1):1885789. doi:
10.1080/20016689.2021.1885789.
A conceptual framework to develop a patient-reported experience measure of the
quality of mental health care: a qualitative study of the PREMIUM project in
France.
Fernandes S(1), Fond G(1), Zendjidjian X(1), Michel P(1), Lançon C(1), Berna
F(2), Schurhoff F(2), Aouizerate B(2), Henry C(2), Etain B(2), Samalin L(2),
Leboyer M(2), Misdrahi D(2), Llorca PM(2), Coldefy M(3), Auquier P(1),
Baumstarck K(1), Boyer L(1).
Author information:
(1)Aix-Marseille Univ, School of Medicine – La Timone Medical Campus, EA 3279:
CEReSS – Health Service Research and Quality of Life Center, Marseille, France.
(2)FondaMental Foundation, Créteil, France.
(3)Institute for Research and Information in Health Economics (IRDES), Paris,
France.
Background: The objective of this study was to develop a conceptual framework to
define a domain map describing the experience of patients with severe mental
illnesses (SMIs) on the quality of mental health care. Methods: This study used
an exploratory qualitative approach to examine the subjective experience of
adult patients (18-65 years old) with SMIs, including schizophrenia (SZ),
bipolar disorder (BD) and major depressive disorder (MDD). Participants were
selected using a purposeful sampling method. Semistructured interviews were
conducted with 37 psychiatric inpatients and outpatients recruited from the
largest public hospital in southeastern France. Transcripts were subjected to an
inductive analysis by using two complementary approaches (thematic analysis and
computerized text analysis) to identify themes and subthemes. Results: Our
analysis generated a conceptual model composed of 7 main themes, ranked from
most important to least important as follows: interpersonal relationships, care
environment, drug therapy, access and care coordination, respect and dignity,
information and psychological care. The interpersonal relationships theme was
divided into 3 subthemes: patient-staff relationships, relations with other
patients and involvement of family and friends. All themes were spontaneously
raised by respondents. Conclusion: This work provides a conceptual framework
that will inform the subsequent development of a patient-reported experience
measure to monitor and improve the performance of the mental health care system
in France. The findings showed that patients with SMIs place an emphasis on the
interpersonal component, which is one of the important predictors of therapeutic
alliance. Trial registration: NCT02491866.
© 2021 The Author(s). Published by Informa UK Limited, trading as Taylor &
Francis Group.
DOI: 10.1080/20016689.2021.1885789
PMCID: PMC7906613
PMID: 33680364
Conflict of interest statement: The authors report no conflicts of interest in
this work.